God make me a Warrior Mama.

I saw this several months ago, and it really touched my heart. It gives me clear understanding of What CHRIST did for me on the cross. Perhaps I am being sentimental today, but I know God has a reason for everything- even this plaque (yes I call it a plaque) called autism- because it is so debilitating to my son. It is not a gift, but a trial. I can say that God is with me, God is with my son. Lord help me to be an Autism Warrior Mama, that can help Isaac get to where he needs to be.






 

Claiming my Namesake

I have not blogged for a while- many behind the scenes events have happened.


Isaac lost his first tooth this morning.

 He learned to wave- and does it when we ask.

He is doing much better with eye contact, and talking to us in sign language.

Mike started his new job in DC and right now he works the night shift.

Isaac has ran away from the house several times this past week...

I am going to autism one next week, and this is the first.


I  hope to learn more about how I can help Isaac- but also so that I can learn how to advocate more efficiently and how I can make an impact where I live - near DC.


I am a mom- a wife, and an autism recovery advocate.

If you are just a mom who wants to live a complacent life with your child- and not getting him any help- Don't come talk to me- because I do NOT want to have any part in a stagnant recovery process....


I apologize if there are some out there reading this right now- that are in that place of complacency with their child.


I mean no disrespect for your mode of life- but I do not want to be a part of anything that is mediocre (IMO) when it comes to recovery from Autism.

Today's Autism - is not the past Autism (or is it)
 and so I call it Vaccine Injury- because that is what it is...


Isaac's gut is a mess- how do I know this? ( and I am not a Dr.)
he has chronic bouts of constipation and diarrhea - going way back to when he was a baby at 2 months of age-- after his vaccination- he was constipated so bad- that the x ray showed he had a blockage....
this is NOT normal. Miralax does not solve the problem.


So we are working to get his GUT health better- so that he  can grow.
Do you have a child that just doesn't seem to grow? Chances are more than likely he or she can not absorb nutrients from food, because their gut is damaged!

Isaac had a scope done (colonoscopy, and endoscopy)  and it showed that he has lymphocytic colitis, and lymphoid hyperplasia.


So getting back to my name sake-- my mom named me after TARA- the plantation in Gone with the Wind.

I really didn't like my name when I was a kid.
When I learned that I was named after a house.. I was like "What?"

Now however, I am fine with it- it actually helps me to realize that I am here to stay- in this fight for my son to regain some cognition- to be able to talk.

I am going to Autism One in just a few short days. Its a pilgrimage to find out how I can help my son.

It will be a spiritual journey. It will be a medical journey. 

Gone are the Dr's that tell me there is not anything to be done for my son. (that would be military dr's)
Gone are the people that discourage any kind of care for my son

They are gone with the wind- and I am still here- caring for my son.
I am not going anywhere, and I will not be moved to quit.

I am doing all I can to help my son get better from vaccine injury.

Recovery for our kids with Autism: Getting out of our comfort zone

I recently chatted online with several moms who balked at the thought of their kids actually recovering from Autism. After all- they have listened to and heeded everything their mainstream military doctors have told them.

No doubt that Dr's like Dr. Shropshire at Belvoir have said that "Diet doesn't work"
or that "Vaccines have nothing to do with Autism. "

No doubt they have  freaked at me when I asked for a continuation of transdermal DMSA when switching from Standard back to prime, to try to save money.
They reminded me that chelation was extremely dangerous, even though that while on standard Tricare paid for the prescription.

No doubt Dr.'s like Dr. Jude  retorted  to them that "Chronic Constipation is normal for kids with Autism"


No more Mrs. Nice Autism Mom- I am fighting back.

I am going to tell everyone what horrible doctors are in the North region at Military treatment facilities. Theirr care for our kids is deplorable.


I told a neurologist- Dr. Dennison, that my son was vaccine injured, he didn't believe me.

I made him feel uncomfortable. He was not willing to look further into helping my son- he did not care.



Parents need to know what and who they are dealing with when it comes to Dr's that treat Autism- and the things that make them Autistic.


You know there are root causes right? Reasons our kids bang their heads... reasons they can not poop, reasons that they have constant diarrhea.


There is no reason why our kids should remain in a state of pain. They need help. It's up to you as a parent to get out of your comfort zone, reach out- ask questions, and visit Dr's that want to help.



More to come from me you can be sure of that!

Update on Isaac's Recovery Progress

Isaac is doing well. Occasionally he will verbalize- which is much better than him being quiet- I want him to speak.


Isaac has picked up sign language very fast. It has been years that we have been working with him with signs, and signing time, but he never picked it up. Now after many years- he finally gets it! - he is signing for communication.


Right now he can say this in sign:   " I want papers please"


He can say "I want _____ please"


Sometimes he fills in that blank with papers, sometimes eat, sometimes pointing to other things, but he is communicating, and he is getting frustrated because he can not communicate effectively (fast enough) for us to be able to get him what he wants.



We started Isaac on GABA about a month ago- consistently every morning in his shake. Then we added .

he is doing well...s o far here are his supplements that he takes:




Can - Albex 30x- for candida eradication




In his shake in the morning

Cal/Mag/Zinc from Trace Minerals
Phosphatidylserine
GABA
No-Phenol
L-Methylfolate
L-Theanine
Special Digestive Enzymes from Holistic Health
Amino Assist
BeCalm
b-12 MC Spray
Also we are putting 1/2 tsp Zija Smart Mix in his shake.

He is doing well....but there is no real Magic Bullet"

Although he did say "Good" the other day in ABA- it was from hearing someone else say it
 but just hearing his voice- gave me goosebumps!


We have also started using essential oils with him, and I now sell Young Living Oils- here is my website if anyone is interested in joining me, or buying from me- the oils have many health benefits- and if it doesn't work for you- there aren't any side effects other than a headache until the oils evaporate.


I hope that Isaac can detox with the oils, at a slow pace. I still plan on using chelation again!
But for now we like what we see, and we know that sticking with it and being consistent is key!

It is NOT better diagnosing....it's more vaccines!

The other side of the story- Dr. Andrew Wakefield

Why I no loner support Autism Speaks

I went to my first gathering of Autism advocate in January 2012. I was excited  and elated- we sat near the front- my daughter and I - she calls herself my manager....

Then I was handed a folder with the blue puzzle piece on it, and I saw the words Autism Speaks.....

I was kind of put off- but I gave them some benefit of the doubt, after all I was familiar with the chatter going around the Autism -Bio-med circles about how Autism Speaks was just a group of vaccine pushing scientists working for pharmaceutical companies....


Then the week before Autism Awareness Month started, Autism Speaks came out with this article stating that "Vaccines have nothing to do with Autism"


Which is very contradictory, because after all  Dr. Jeri Dawson- who is the "Chief Science Officer" of Autism Speaks- she did say....From Ginger Taylors blog: 






"There is no evidence that the increase in 

prevalence that we're seeing in Autism Spectrum Disorder is linked to the MMR vaccine. You 

know, if vaccines play a role, and there has not been any evidence thus far to show that it 

has, it would be a very small minority of individuals who have an underlying medical 


condition where the vaccine may have triggered an onset of symptoms for an already 

existing condition or vulnerability. So we do not believe that vaccines are an explanation of 


the increase and we strongly encourage parents to get their children vaccinated."- Dr. Geri 

Dawson





But everyone that has replied to this article, state that this "study" is nothing new, and 

pointless in origin..... 

more useless words from Autism Speaks.....


I know people that work for Autism Speaks and they are compassionate individuals, and 

then I know people who are not very compassionate, and they would rather keep their jobs- 

even if it meant them hiding the truth.....



We were going to be a part of a genome typing study at Kennedy Kreiger....but after I 

discovered that the study was funded by Autism Speaks, I had doubts, but still wanted to 

do it... then I had parents of ASD kids tell me they were in studies like that and got kicked

out because their kids were vaccine injured like mine.....



And only when this new article came out did I decide...enough is enough...


I do NOT want Isaac to be a part of whitewashing and half truths....


so I emailed the IAN project over at Kennedy Kreiger....


and within a week, the Head Scientist calls me on the phone....


and tried to do damage control.......



but I still think that we will not be a part of this study.


 I hope that this scientist is doing damage control with many parents...keeping him busy....

Update on Isaac

Isaac is doing well this week, typically he has had very bad behavior  meaning he shreds any paper he can get his hands on, spits, plays in his spit, laughs at everything, even when he is in trouble with me.... but lately - this past week we added GABA to his supplement list, and we included it in a new food in the morning. Taking advantage of our Vita-mix purchase- we started giving Isaac a breakfast shake of organic blueberries, strawberries and coconut milk. We include his supplements. He is taking right now:



Methylfolate
GABA
No-Fenol
Phospatidylserine
L-Theanine



Adding this week:


Can Albex 30x  (homeopathic remedy for yeast)




We have been doing some essential Oils from Young Living, as I am a distributor now- to get the discount for Isaac for some oils that I think will help him. I have learned that these oils work on a cellular level, and can cross the Blood Brain Barrier.

Still to come for Isaac :

Glasses


A visit to New Orleans- and  genetic specialist that will help get him a mito diagnosis for insurance supplement coverage...

What I want to say to you is this:

Isaac's Sleep System

For a while I have been contemplating a bed for Isaac. I looked at various foundations that will help in that area- but the prices are very high for a bed that would contain him. We weren't looking for anything grand, but functional.


I decided to design a sleep system that would work for Isaac. It really wasn't that difficult.


All I did was think of issues that would come up- those that I have been terrified with....

his escaping - number one,
 and number two- his leaving the room, getting into the fridge...

and I didn't want to put him in  a cage...


so for our sleep system we have a tent....


and he loves it!

I bought a tent off amazon- 26 dollars including shipping...

We have a crib mattress already- yes he is still small enough to fit on  a crib mattress...


so we put the mattress in the tent... along with his new weighted blanket.... and a pillow..

and he sits in their with his dynavox watching a movie until its bed time...

sometimes he bring a toy in or reads a book...

 I can zip it up and he cant get out until the morning- and I can see thru it to make sure he is alright.
Until he figures out how to unzip it from the inside- its an excellent sleep system for him!